For our last Community Spotlight of the year, we want to highlight the courage of Veronica Masters.
Veronica bravely accepted the interview request from CBC to talk about something she — and a number of other HCV-infected individuals — are facing as one of the main barriers to treatment: the cost of treatment. However, they are not only battling the cost of the treatment, they are struggling against access to the treatment:
The cost of a revolutionary medical treatment for hepatitis C is so high that only those with moderate liver disease will have the medicine provided under provincial pharmacare programs. (Carolyn Dunn, CBC News)
In the interview, Veronica details her struggles with the illness, and how she feels about not being “sick-enough” to qualify for funding for treatment.
Our HCV Nurse and General Manager, Shawn Sharma, was also in the interview and spoke on the struggle from the health care provider’s perspective:
“You have to see the patients through the months and they’re just always actively questioning you, ‘Why are you not wanting to treat me?'” Sharma says. “That in and of itself is difficult to kind of go home with every day as a health-care professional.” (CBC News)
The goal of VIDC’s involvement in the interview was to support Veronica is bringing attention to the struggle that a number of HCV-positive individuals face.
Follow this link to read more about Veronica’s story as reported by Carolyn Dunn from CBC; and this like for the report from Uncover Michigan by Amy McClellan on Veronica’s interview.
We will continue to support Veronica in whatever way we can and do all we are capable of to help her access the treatment she needs.
We at VIDC salute you, Veronica, for speaking out and bringing attention to this plight that HCV-infected individuals face.